Resources
ARJ Infusion Services understands and emphasizes the importance of information allowing you to be your own advocate. Knowledge is power. We offer you a variety of services to keep you well informed and organized.
The ARJ Patient Resource Manual is a binder filled with a variety of educational materials. It gives you a place to keep all of your medical records, insurance information and paper work, as well as tips to help better manage your disorder.
Below is a list of valuable websites related to:
Bleeding Disorders | Immune Deficiencies | Auto-Immune Disorders
Coalition for Hemophilia B
www.coalitionforhemophiliab.org
Hemophilia Emergency Care
www.hemophiliaemergencycare.com
Hemophilia Federation of America
www.hemophiliafed.org
Hemophilia Moms
www.hemophiliamoms.com
LA Kelley Communications
www.kelleycom.com
My Inhibitors
www.myinhibitors.org
National Hemophilia Foundation
www.hemophilia.org
Project Red Flag (NHF)
www.projectredflag.org
Immune Deficiency Foundation
www.primaryimmune.org
International Patient Organization for Primary Immunodeficiencies (IPOPI)
www.ipopi.org
The Jeffrey Modell Foundation
www.jmfworld.org
Severe Combined Immunodeficiency (SCID)
www.scid.net
CIDP International Foundation
www.cidpusa.org
GBS/CIDP International Foundation
www.gbs-cidp.org
The Neuropathy Association
www.neuropathy.org
National Multiple Sclerosis Society
www.nationalmssociety.org
National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/disorders/cidp/cidp.htm
National Organization for Rare Disorders (NORD)
www.nord-rdb.com