2018 National Myasthenia Gravis Conference

Posted by & filed under Advocacy, Chronic Condition, Patient Need-To-Knows, Upcoming Events.

kc

Myasthenia Gravis Foundation of America’s National Myasthenia Gravis Conference is the largest gathering of the MG community in the U.S. This year we expect more than 200 participants to gather and learn, share, and socialize with people who understand MG personally and professionally. Topics include treatment options, coping techniques, and how to manage life with MG. The… Read more »

Myasthenia Gravis Association Presents: IVIG 101 with Lisa Sackuvich

Posted by & filed under Advocacy, IVIG/SCIG, Patient Need-To-Knows, Upcoming Events.

Myasthenia_Gravis_Muscles_Nerves_Chronic_Condition

Myasthenia Gravis Association of Kansas City invites you to the next Kansas City Support Group on Saturday, Feb. 3, for IVIg 101 presented by Lisa Sackuvich, R.N., B.S.N., CRNI. Lisa is an MGA board member and founder and president of ARJ Infusion Services, a specialty pharmacy and home infusion company. Lisa’s presentation will address everything… Read more »

Hemophilia Federation of America’s Annual Symposium 2018

Posted by & filed under Advocacy, Hemophilia, Patient Need-To-Knows, Upcoming Events.

Cleveland

Together We Rock! April 26 – 29, 2018   Hilton Cleveland Downtown 100 Lakeside Avenue E Cleveland, OH 44114 216-413-5000   Hemophilia Federation of America’s Annual Symposium is a community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements, and build a network of support!… Read more »

National Hemophilia Foundation Annual Meeting 2017

Posted by & filed under Advocacy, Hemophilia, Patient Need-To-Knows, Upcoming Events.

National Hemophilia Federation Annual Meeting

Exploring the New Frontier Aug. 24-26 Hyatt Regency 151 E. Upper Wacker Drive Chicago, IL 60601 312-565-1234   Join National Hemophilia Foundation for three days of educational sessions, networking opportunities, and special exhibits at the 69th Annual Meeting in Chicago. Attendees can look forward to dozens of events and activities for the whole family to… Read more »

2017 Immune Deficiency Foundation National Conference

Posted by & filed under Advocacy, Chronic Condition, Neurology, Patient Need-To-Knows, Specialty Pharmacy, Therapy, Upcoming Events.

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Join Immune Deficiency Foundation for their National Conference in Anaheim, Calif., June 15 – 17.  Registration for the annual event is now open for patients, families, physicians, nurses, and specialized life management experts. Speakers will present on a diverse selection of topics while guests network with insiders on the leading edge of research and treatment.   IDF 2017 National… Read more »

2016 Regional Inhibitor Conferences

Posted by & filed under Hemophilia, Upcoming Events.

Oct. 21-23, Pittsburgh The Regional Inhibitor Education Conferences provide a weekend of education for anyone with hemophilia A or B who currently have active inhibitors and their caregivers that reside in the same household. These programs offer an opportunity to interact with expert healthcare professionals, patients, and families for a weekend of education designed to improve your… Read more »

World Federation of Hemophilia 2016 Congress

Posted by & filed under Advocacy, Healthcare, Hemophilia, Upcoming Events.

World Federation of Hemophilia | 2016 World Congress July 24 – 28, 2016 Orlando, Fla. You’re invited! World Federation of Hemophilia hosts the largest international meeting dedicated to hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. This year marks the first time in more than 25 years that the global community meets in… Read more »

Immune Deficiency Foundation National Conference 2016

Posted by & filed under Chronic Condition, Pediatrics, Specialty Pharmacy, Upcoming Events.

          June 17 – 19, 2016 Boston Marriott Newton Newton, MA Registration Deadline: May 9, 2016 Outstanding educational presentations Valuable life management sessions Opportunities to connect and share experiences Fun youth and teen programs Interactive exhibits Register and learn more   Special Interest Sessions CGD Programs These sessions, held Sunday morning,… Read more »

Hemophilia Federation of America 2016 Symposium

Posted by & filed under Chronic Condition, Healthcare, Hemophilia, Patient Need-To-Knows, Pediatrics, Upcoming Events.

The Hemophilia Federation of America’s Symposium (March 31 – April 2, 2016) is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements, and build a network of support! Register now before it’s too late. JW MARRIOTT LAS VEGAS RESORT & SPA 221 N Rampart Blvd Las Vegas, NV… Read more »

Myasthenia Gravis Association Annual Meeting

Posted by & filed under Upcoming Events.

Myasthenia Gravis Association Annual Meeting Kansas City Annual Meeting November 7, 2015 9 a.m. – 1 p.m. Hemenway Life Sciences Innovation Center at KU Medical Center 3901 Rainbow, Blvd. Kansas City, Kansas Guest Speaker: Richard Barohn, MD Learn more by clicking here.