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Helping those with rare and chronic disorders of all agesHow a chronic condition and a unhealthy relationship share eerie similarities

Did you know one out of two adults suffer from a chronic condition? It’s true.

Chronic conditions span a variety of disorder types, including immune deficiencies, antibiotics and bleeding disorders. If you or someone you know lives with a lifelong condition, you already understand how this alters one’s life.

People with chronic conditions often struggle with complex emotions, and others may have difficulty relating to these struggles. To help put this into perspective, just imagine: What if a chronic condition were a person? Most likely, this individual wouldn’t be someone who is very welcome in your life.

Here are a few traits that are parallel in terms of how a unhealthy friendship
and a chronic condition can make you feel:

  • Feelings of worthlessness
  • Drains you emotionally and financially
  • Changes family dynamics and relationships
  • Alone in the world
  • Prevents you from achieving your goalsHelping individuals of all ages with different rare and chronic conditions.
  • Out of control

How to get help

In today’s world, it’s about a holistic approach—taking into account not only the physical symptoms (which is hard to see sometimes) of a chronic condition, but the emotional and social factors as well. Many people don’t realize the financial strain, the mental toll and the family dynamics that are affected by someone who has to manage a chronic condition daily.

Everyone’s life is complex and unique. Sometimes you just can’t do it alone. It’s all about designing a blueprint of your life. Look around and see the positive forces cheering you on. Maybe you have a sibling, a child, or a trusted colleague who tries to understand what you’re going through. Focus on the positive, surround yourself with physicians, pharmacists, and nurses to help manage your health, and look to your treatment plan as a guide for effectively meeting your health care goals.

If you’ve found that your infusion provider, caregiver, or physician just doesn’t get it—don’t give up hope. There are many clinicians who will help, don’t settle.

Next time, when someone has a hard time understanding exactly what you’re going through, just ask them if they’ve ever had a toxic person in their life. Chances are they have. Now you’ve just made a connection.

The tunnel might be long, but there is always light at the end of it.

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